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Study Title/Investigator
Released/Updated
1.
Consumers and Health Care Quality Information Survey in California, 1999-2000 (ICPSR 3427)
Berry, Sandra H.; Spranca, Mark; Brown, Julie A.
Berry, Sandra H.; Spranca, Mark; Brown, Julie A.
This survey was conducted by RAND between November 1999 and
January 2000. The purpose of this data collection was to obtain a
detailed view of the present attitudes and opinions of consumers
regarding health care and to inform the development of the quality
improvement program being developed by the California HealthCare
Foundation (CHCF). The mission of the CHCF is to expand access to
affordable, quality health care for under-served individuals and
communities, and to promote fundamental improvements in the health
status of the people of California. This survey sampled over 4,000
Californians, and allowed a close-up view of difficult to reach and
traditionally under-served populations: the elderly, the chronically
ill, the uninsured, low-income populations, and Hispanics. The general
scope of the information gathered included consumer beliefs about
adequacy of health care information they received, preferences for
additional types and sources of information, evaluation of the quality
of existing information sources, and how they used information about
health. Respondents were asked a series of detailed questions about
whether they were concerned about health care, whether they were
experiencing difficulty in choosing health plans or physicians or
deciding upon treatment options, whether there were good, available
sources of information about health care, and whom they trusted to
give them advice about health care. Background information on
respondents includes health status, utilization of care, language,
age, sex, race, marital status and household enumeration, country of
origin, education, employment, and income.
2005-12-15
2.
Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 (ICPSR 36617)
University of California, Los Angeles. Institute for Social Science Research
University of California, Los Angeles. Institute for Social Science Research
The Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 collection reflects data gathered in 1976 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: child abuse, parent-child relationships, right to privacy, and political participation. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: accidents and emergencies, crime, and health care/relationship to doctors.
Demographic variables included in this dataset include age, marital status, religion, sex, education, occupation, income, geographic origin, and race.
2017-09-05
3.
Primary Care Audit Study for 10 States in the United States, 2012-2013, 2014 & 2016 (ICPSR 36785)
Polsky, Daniel; Rhodes, Karin
Polsky, Daniel; Rhodes, Karin
Coverage expansion under the Affordable Care Act (ACA) has important implications for access, and the value of coverage is dependent on the ability to access care. Most information about access to care comes from household or physician surveys.
The current data collection was gathered as a part of the Primary Care Audit Study for 10 States in the United States, 2012-2013, 2014 and 2016 to assess variation in access to primary care using a methodology that was applied across different types of states (Arkansas, Georgia, Illinois, Iowa, Massachusetts, Montana, New Jersey, Oregon, Pennsylvania, and Texas) at baseline and over-time. The project was broken up into three phases: before the ACA (2012-2013), during the launch of ACA coverage provisions such as the Medicaid fee bump and ACA marketplaces (2014), and after the full ACA implementation (2016). Insurance types in the study included commercial coverage, Medicaid, uninsured, and, in 2014 and 2016, plans purchased on the ACA market place.
The audit-level file, featured in part one of the collection, includes all completed calls and provides information from multiple dimensions (appointment availability, wait times, simulated patients' demographics, cost information, etc.).
The office-level file, featured in part two of the collection, covers all eligible offices and their characteristics (e.g., size, insurance acceptability, cost information, etc.) collected from the screening phase.
Demographic variables include simulated caller number, race, gender, and age.
2018-10-10
4.
Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)
Bradford, Judith B.; Grasso, Chris; Coleman, Sharon
Bradford, Judith B.; Grasso, Chris; Coleman, Sharon
This project examined HIV-infected patients who were lost to follow-up during calendar years 2001-2004 in order to identify reasons patients were leaving care. Sustaining and retaining HIV-infected patients in care has been a consistent challenge to primary care health systems. Continuity, enhancing wellness, and patient engagement are long-term goals in primary care. Factors that influence clients to disengage from care frequently result in patterns of episodic utilization that may compromise the patient's health status and increase their psychosocial vulnerability. The standard of care suggests that HIV-infected patients return for medical follow-up primary care visits four times a year. Since 2001, there have been over 495 patients that have been determined inactive. The project administered telephone and mail surveys to HIV-infected patients that no longer receive care at Fenway Health Center. The survey includes demographic questions, insurance questions, potential reasons for stopping care, and whether the participant is receiving care at another facility. Subsequently, the project connected interviewees into the Health System Navigation (HSN) Project to assist them with seeking HIV medical care. This was accomplished by including prescreener questions in the survey. If a patient is determined to be eligible, they will be invited to participate in the HSN Project.
2010-08-30